Research Library

Community organizations: n/a

Integration timeline: not defined

Key populations: South Asians in Edmonton

Key recommendations:

• Engage with ethnocultural communities when building lasting information-sharing partnerships
• Develop frameworks that can assist researchers in developing and documenting partnerships with ethnocultural communities.
• Explore and expand the process of rapport and relationship building with communities about the building of an information sharing partnership
• Ensure documentation of this process, along with a systematic way of collecting the community perspectives on barriers and facilitators to sharing information.

Location: Edmonton, AB

Open access: No

Future research / gaps identified:

Key findings:

• Participants reported that when the process of sharing information was made easy, they were more likely to share.
• Generally, participants were hesitant to share information that was overly specific to them
• If the stakeholder requesting the information was credible, the participant felt safe to share their information
• Overall, participants expressed an altruistic attitude towards sharing, where they were more willing to share if it meant that the sharing process could benefit the community.
• Anonymisation was important for participants, especially when sharing information that was potentially sensitive.

• Participants reported that more communication with the community regarding health issues or the research that is being conducted and the expected benefits of the research will aid in more information sharing amongst community members.